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Video of immigrant mother and child crying
After many years, Irene and her son tried to smooth out their lives and rebuild them again and again, only to find that life never healed.
In the Spring Festival of 2006, 8-year-old Li Bo had loose bowels. Unable to find the cause at home, grandma insisted on sending Li Bo to the hospital in the town. After that, the doctor thought he was suspected of pneumonia and kept giving Li Boan an infusion bag or bottle. However, the treatment did not make Li Bo's condition much better. After half a month, young Li Bo lost 22 kilograms. On one occasion, relatives and friends came home to visit and saw that the child was in poor health and had been ill for a long time. They reminded Li Bo's father that the child should not be seriously ill and should not be dragged on like this. After that, Li Bo was sent to Shenzhen Children's Hospital for medical treatment.
They got the telephone number of the authoritative expert. Experts first ruled out the possibility of tuberculosis, and then the doctor asked the nurse to draw a tube of blood for his son to check the HIV antibody. The results came out soon, and the doctor asked, did the child have an operation? The test results show that the child is HIV-positive.
Li Bo's father denied it, and the doctor felt strange and took another blood sample to check it again. That blood draw, the father saw the child crying because of blood draw pain, and he almost clashed with the hospital.
The re-inspection result is still positive. The doctor's conclusion is that if such a small child has no blood transfusion, surgery and no sex life, it must be mother-to-child transmission. He suggested that Li Bo's father take his wife with him to check for HIV antibodies.
When she received a phone call from her husband, Irene had just resigned from her hometown and soon taught in a school in Guangdong. On the phone, the husband told Irene that something was wrong, but insisted on not telling Irene the specific diagnosis. It was not until I heard Irene's voice tremble and repeatedly asked him to make it clear that her husband told Irene briefly: it was AIDS.
When Irene arrived at Shenzhen Children's Hospital, the hospital had given Li Bo two treatment orders. First of all, children are not allowed to leave the ward to prevent infection. Secondly, the hospital requested that the children be transferred to the East Lake Hospital at that time, the infectious disease specialist hospital in Shenzhen, which is now the Third People's Hospital of Shenzhen. There can provide better treatment for Li Bo.
The child is AIDS, and a bomb was dropped in this small family.
After Irene and her husband completed the formalities, she asked her mother-in-law to take care of her son and immediately ran to the Internet cafe. They turned on the machine and immediately opened the web page to search for those three words. A few pages of information poured in, and one word stood out-the terminal disease of the century. In Irene's impression, all the materials she saw at that time supported the same statement: if she got the disease, she would die and everyone would spit on her. They quickly finished the search, and before leaving, the husband quickly deleted all traces of browsing.
A few days later, the Shenzhen Municipal Center for Disease Control gave the couple's HIV test results. Irene is active and her husband is healthy.
The responsibility obviously falls on Irene. According to the three modes of transmission of HIV: sexual transmission, blood transmission and mother-to-child transmission, Irene may have passed the virus to her son through mother-to-child transmission. Because her husband does not carry HIV, the virus in Irene's body can't come from her husband. As for why her husband is not infected, Irene can only speculate that it is related to the probability of infection.
But what bad things have you done? After asking herself for a long time, Irene remembered the caesarean section eight years ago. She gave birth to Pang Bai's son Li Bo in the town. After coming down from the operating table, the hospital called a blood seller in. After he matched Irene, the hospital injected 400 ml of his blood into her body.
Irene and Li Bo's attending doctor talked about this experience, guessing that the person passed the disease on to her. As a result, the doctor denied the guess in a questioning tone. 1996, the state has explicitly prohibited illegal collection of plasma, and the blood transfusion method described by Irene cannot be adopted in regular hospitals. He thinks the woman in front of him is making excuses. The distrust of the doctor made Irene feel a strong sense of shame.
After sending the child to Donghu Hospital, Irene and her husband cried all night. In her state of mind at that time, she cried more for her son Li Bo. It was the third year that she and her husband went to Guangdong for development, and the couple deposited 654.38 million yuan. They agreed that although the child could not be cured, it would take 65,438+10,000 yuan to stop.
As an index to measure the survival of HIV-infected people, the value of CD4 (an important immune cell of human body) in Li Bo was only 17 per square millimeter at the beginning of admission, but generally speaking, CD4 less than 200 per square millimeter means high risk. After the doctor diagnosed, it was confirmed that it was actually two complications brought by AIDS-pneumocystis carinii pneumonia and tuberculosis of lymph nodes that caused Li Bo's diarrhea and even death every day.
In the exclusive ward of East Lake Hospital for AIDS patients, there are cries of farewell to the deceased in the middle of the night every day. Now, the youngest son is suffering from AIDS and his life is dying. I brought all this by myself as a mother. This worried her.
In the ward, Li Bo is the youngest patient. Until the beginning of June of that year, the hospital issued a notice of critical illness. Irene dare not give up. She took her husband and decided to continue gambling with fate. After finding a non-profit organization to seek funding, they sent their children back to their hometown for treatment by MSF. The new treatment has really improved Li Bo's symptoms. After half a month, he stopped having fever and diarrhea, and his appetite became better and better. He asked Irene to take him to a restaurant.
The child was saved. However, Irene and her husband's marriage completely lost contact after a short period of financial assistance. During the children's primary school, Irene and her husband separated for nearly three years. Irene wants to give her son a complete family life. She persuaded her husband to go back to his hometown, and his attitude showed hesitation. He said that he wanted to stay in Guangdong for further development.
During the dispute, the husband expressed the idea of divorce. He asked Irene, "Can you take the initiative to file for divorce?" The moral burden of abandoning his sick wife and children is too great for him. After being rejected, the man begged Irene to let herself go.
Irene tried to keep it, but she finally gave up. As a condition, the man promised to give the child 2,000 yuan a month after the divorce and take the child to eat once a year.
In the end, only the mother and son were left in this family. There is also latent HIV.
After young Li Bo's physical condition was stable, Irene began to defend herself and her son. This is actually forced by life, and the treatment has spent all their money.
In Irene's hometown, a "bloodbath" of AIDS broke out around 2000. Irene returned to her hometown, and almost all the roads and white walls were covered with posters of "AIDS" science popularization. The earliest lawsuit of AIDS patients' rights protection also appeared in Hubei. In 200 1 year, when Shen Jiang, an infected person, brought his wife's blood transfusion hospital to court, all three were virus carriers. Finally, the court awarded the hospital compensation.
In 2006, Irene met many infected people in the same hospital in the waiting room of the local CDC, including the students she taught and nine pregnant women in the same county. The living are discussing collective rights protection.
At that time, 50,000 yuan compensation and different amounts of lost time for each person were all the compensation that the families of AIDS patients could get. For Eileen, before she gets compensation, she can only go to the government to wait and reflect the situation.
At first, this strange place made Irene feel uneasy. She described the process of asking for information in the county government: "I get scared every few steps." Fortunately, her squat paid off in a few days. A few days later, when Irene was wandering in the toilet, she saw a man who looked like the county magistrate in the photo and decided to follow him. When the secretary pushed open the office door, Irene stepped into the room.
Irene said: "I am an AIDS patient."
No one spoke. Irene sat in front of the county magistrate and introduced her identity. Her tears fell uncontrollably. Crying is not the purpose of her appearance in this office. She steadied herself, took out the "Regulations on AIDS Prevention and Control" from her bag, and asked the county magistrate to help her and her companions restore the productive self-help ability of AIDS patients according to the regulations.
In Irene's story, at the end of running-in, the county magistrate told his secretary to resume Irene's local job in front of her. But later, because Irene was an AIDS patient, she was not qualified to go back to school, but only got a basic salary of about RMB 1000 per month.
Irene defended her rights for three years. With the reflection of the situation again and again, Irene's identity as an infected person has also spread in the county. This is not a natural decision. All the infected people involved in rights protection have struggled between exposure and non-exposure. But in the end, they reached an agreement that only by exposing themselves can their demands be seen. However, Irene, who exposed herself, also realized that Li Bo's condition must be kept secret. Once exposed, it is likely to have unexpected adverse effects.
Later experience proved that this was the correct judgment.
Among the children born and infected in the same county as Li Bo, nine exposed their identities in school, and then they were treated differently to varying degrees.
The children studying in the village primary school were arranged by the teacher to sit in the corner of the classroom. The teacher didn't correct his homework, and the students all looked at him like monkeys. In the middle school of the town, a child, physical education class, fell on the street, bleeding. The PE teacher gave the child a hand and touched the wound. The PE teacher called the CDC and asked her in horror if she was infected. These details have deepened the brand engraved on these children.
Even children who are confirmed to be healthy cannot live as freely as ordinary children. Among the companions who defend their rights with Irene, there is a couple who are HIV carriers. They denied this fate and gave birth to an uninfected child through mother-to-child blocking. Around 20 10, children go to kindergarten in the village. The news came out that the parents of other children collectively opposed their children's admission after learning the news. The two sides went to the education bureau, which asked the kindergarten to allow children to enter school. As a result, all the other children were transferred away by their parents.
Seeing the experiences of these children, Irene decided to keep Li Bo's illness a secret. The career of running made Irene strong, and she began to build an ideal growth environment for her son according to her own plan.
She set out to keep Li Bo away from the venue where she appeared. To this end, she bought a house in a city 0/00 kilometers away from/kloc, and wanted to send Li Bo to a completely unfamiliar environment to study.
Before the school started, Irene asked Li Bo to take part in AIDS publicity activities. This is the first time that Li Bo realized his illness. The doctor pointed to the poster on the wall and told the children that there is a virus in our body that can be transmitted to others in three ways. After coming back, Li Bo told grandma these words. He said: "My mother was infected with the virus through blood transfusion. Now, my mother infected me with this virus. " Grandma guessed the truth from the child's strange description for the first time and cried in despair in front of the child.
Seeing this situation, Irene squatted down and stared at her son, telling him in a serious tone that this virus is called HIV, but you can't tell everyone except our family. If you tell this to other children, you will have no friends. People will spit on us.
Li Bo suddenly froze. He nodded obediently and never said these words to anyone again. Irene wants Li Bo to grow up as a normal boy as much as possible, but it is not easy for AIDS patients to live a normal life.
Being an AIDS mother has no experience to learn from. After the divorce, Irene asked her ex-husband to buy a basketball for her son. Unfortunately, Li Bo is not interested in basketball. Basketball is still on the balcony of the mother and son's house. After many years, it shed its skin.
Later, Irene hired a one-armed table tennis coach for her son to let him know the power of spirit. After studying for three weeks, her son lost interest. The only thing that made Irene satisfied was that her son was admitted to a local key middle school.
In the summer of 20 10, Li Bo had his first summer vacation, and Irene took him on a one-month trip to Beijing. In Irene's plan, this is a customized trip to educate Li Bo. A few days ago, Irene took Li Bo to visit all the pavilions she had heard of. Coming out of the National Museum, I saw the 798 Art Park, which is open in the morning and closed in the afternoon. Near noon, Irene was worried that her immersion would be interrupted. She didn't leave the meeting, and sat in the rest area with her son to eat cookies to solve lunch.
The center of gravity of the journey is Tsinghua Peking University Campus. Irene hired a driver to show them around the Tsinghua campus. Everywhere the driver went, he introduced excellent Tsinghua alumni to his son and had a 40-minute ideological class. After leaving school, the driver also made a concluding speech to his son: Study hard and get into Tsinghua!
Although Li Bo, who just entered junior high school, seems to understand, her mother Irene feels lucky-the driver said the most important thing for her.
Her son Li Bo grew up according to Irene's design, which made her feel at ease. Irene kept stressing the importance of study to her son, but what Li Bo learned was that her mother strictly asked her to "study hard". She can't explain her long-term plans to young children. She wants her children to work hard enough so that they can live a normal life in the future.
Whenever Irene is under great pressure to defend her rights or take care of her children, she will shut herself in her bedroom and turn on the computer to play spider cards. For a long time, this habit was understood by Li Bo as a sign that his mother neglected himself.
For a period of time, Irene's protection gave Li Bo room to grow up like an ordinary child and avoided discrimination. However, the negative effects of this kind of strict defense are gradually emerging. Li Bo has no friends at school. He is eager for friendship. Once, he saw a doll talking to herself on the TV shopping channel: Hello! He was moved in an instant and begged his mother to buy it for himself. Irene looked at the price tag: 298 yuan, but she was too careful to agree. Instead of crying, he sat down and cried. He finally got the doll. Mother bought a doll from the internet, which was very small in kind and spent the first three months with him in the new school.
Irene began to lose control of her son. One morning in the second day of junior high school, Li Bo didn't eat the milk and cake prepared by Irene as usual, but bought breakfast himself. Another day not long after, Li Bo didn't attend lunch. Irene felt strange and ran to the door of her son's class to find someone. She ran into Li He coming back with bread. Irene's face sank and asked, "Did you go to the Internet cafe?" Li Bo dared not speak, and Irene guessed the answer from the child's silence.
In the evening, when Li Bo came home from school, Irene patted him on the knee. Irene slapped Li Bo in the face almost crazily and shouted, "How can you live without studying hard?" You can't pull a cart in the street in the future! "
Li Bo did not refute. He didn't speak. He propped up the ground with his knees and knelt straight.
Irene felt that Li Bo's path was off track. After that, she stopped giving her son money for breakfast and let him eat his own milk and cake at home. This will reassure her.
The direct confrontation took place one night a few days later. Li Bo opened Irene's bedroom door, directly lifted Irene's quilt and held it in her arms.
On the night of the twelfth lunar month, junior high school students looked their mother in the eye and asked her to give him the 2,000 yuan alimony that her father gave him every month: "So you don't have to buy me milk and cakes every day." Irene immediately refused: impossible, I am your guardian.
Li Bo didn't insist. He returned the quilt to Irene, looked at it with his mother for a while and gave up.
Looking back, that doesn't mean that Li Bo willingly returned to his mother's protection, but insisted on his opinion more silently. He began to decide freely whether to skip class or study at home or study in an Internet cafe. But whether he skipped class or stayed in the classroom, he had no companions. In adolescence, he handed in a blank paper at school and was scolded by his mother at home. No one shared it and no one listened. Even if he sits in the booth of an Internet cafe, there is no one to accompany him in the virtual world, and he faces his inner world alone.
Li Bo dreams of escaping from his mother's control and putting it into action. He once left home with 400 yuan for seven days and seven nights. At first, he went to the Internet cafe to take root. Every meal time, he only buys cheap snacks to satisfy his hunger, so that he can earn more money to play League of Legends. Later, a fire broke out in a nearby Internet cafe at night, killing nearly 30 people. The public security department banned Internet cafes from opening at night, so Li Bo had to find another place to spend the night or go home. If he chooses the latter, he is likely to face severe criticism from his mother.
Without extra money to stay in a hotel, Li Bo would rather wander the southern streets in winter. He moved to McDonald's first, and after McDonald's closed in the early morning, he wandered in the street. Years later, he still remembers sitting outdoors for a while and then getting too cold. It is hard to believe that he walked in the streets for eight hours.
Even in that case, Li Bo didn't forget to take medicine on time. He counted the time when Irene went out every day and secretly ran home to get the medicine. Take two tablets in the morning and evening with an interval of 12 hours, which is the bottom line to ensure that the disease does not recur. He has always known the virus in his body.
Li Bo, 14 years old, died in 400 yuan on the eighth day. He had no choice but to go home and wait for Irene to scold him. Fortunately, Irene didn't scold her son when she saw that his face was so thin. In the eight days of searching for Li Bo, Irene just couldn't figure out why she loved her son so much that he just didn't want to go home.
Since then, Irene has tried many ways to "get Li Bo back on track". She transferred Li Bo from a key middle school to her hometown county, and was demoted to the second day of junior high school to study again, hoping to return to the familiar environment and reduce his study pressure. But to no avail.
Finally, Irene dialed 1 10 when she couldn't find her son in any Internet cafe. She said fiercely to the police in the county: "My son is an AIDS patient. Now I want to find this child and let him drink some medicine. "
With the help of the police, Irene found Li Bo in an Internet cafe. She dragged Li Bo from his seat in the Internet cafe to the street. After the police left, Li Bo turned and ran. Irene ran for a walk in the back. 10 minutes later, she lost Li Bo.
Standing in the street, the strong mother had the idea of giving up for the first time. After that, she no longer restrained Li Bo. Li Bo went home and finished high school in a local school that was regarded as the "last stream". Every week, she will visit the Internet cafe for about four days.
When he was in junior high school, Li Bo heard that he could be a soldier after finishing his first year of high school. This became his goal in life. He wants to make himself more determined, and feels that once he gains perseverance, his life will be completely new when he comes back from the army.
Li Bo's new goal has put his mother in a new predicament. Irene knew that the army would not accept infected people, and she dared not put out her son's hope. Finally, she had to drag her son and promise him, "We will consider this problem when you 18 years old."
The desire to be a soldier makes Li Bo's life seem to be motivated. He decided to sign up for the school sports team, run, lift weights and practice strength every morning, and seldom go to Internet cafes. In less than a year, he found that his abdominal muscles had shadows, which were hard to touch and had eight pieces. He is over 1.7 meters tall and his body fat rate is below 10. Once he builds his muscles, he looks strong.
In the second semester of Senior Two, students in Li Bo's class began to sign up for the army. At that time, he was told by his mother that his conditions were not confessed. Irene told him that she could write a letter to the AIDS charity ambassador every month, calling for a reconsideration of this rule, starting from the next semester of senior two and writing until the college entrance examination. His mother reassured him that she believed it would promote the process of HIV-infected people becoming soldiers.
Li Bo didn't understand this and didn't respond, which made Irene no longer embarrassed.
Li Bo later recalled this kind of life. He described himself as a "prisoner on death row". No other child on the sports team is taken care of so well as he is. Mother often sends him meals in front of all the players. At the moment when a group of teammates took the lunch box and opened the lid, Li Bo said that it was like accepting some kind of favor from the "prisoner".
Irene knows nothing about it. She has her own anxiety-as Li Bo grew up, Irene realized that her desire to integrate her son perfectly into the crowd was gradually shrinking. Because of AIDS, Li Bo can't join the army and can't apply for public institutions; He can't go to a good university because of his poor grades. The direction of children's life after the age of 18 is still very vague.
She finally realized that a mother's love just now could not warm her son. In Irene, a rare disease broke out. In less than three years, my eyes have been ill several times. The last eye is blind. The hospital diagnosed neuromyelitis optica.
Irene decided to adjust her state and let go of her control over her son. She encouraged Li Bo to fall in love and used her social security card to buy a box of condoms for her son and put them at his bedside. Later, Li Bo found his own love, and the other party was also an AIDS patient.
In the early spring of 2020, Irene, her son and her son's girlfriend were isolated together in a house in a city in Hubei Province. One night in March, Li Bo is going to set a hot pot on the dining table in the living room. He brought the cut vegetables, and Irene wrote on the table with a brush: Give me three more minutes. He answered two words: disgusting.
This is the second time Irene has heard her son scold herself. The first time was in January, Irene received her son's WeChat and asked if she could help him with a car training fee. Irene refused her son's request for the first time. Then, he sent two words-"disgusting".
Irene was unprepared. This son, who has his own blood in his body and has been raised hard for 22 years, will curse himself with such words. Not long after, she heard her son say "disgusting" again.
As a mother and child, what is it?
Irene felt a tingle. She cried and asked her son, "Why did you say such things to the people closest to you?" A few days later, Li Bo apologized to her mother on WeChat.
Irene can't get over it. She can't say it. Obviously, an apology is not enough. This is forcing Li Bo. He walked quickly from the hall to the balcony, opened the window and suddenly leaned out of it. Irene was frightened.
After the conflict, Irene decided to let go of her son completely. Li Bo is 22 years old. Except for eight carefree years, he took him through the mud the rest of the time. In fact, her life with her son has long been empty.
The days of struggling in the mud are really disgusting. As a mother, Irene is very tired.
Home is the same as before. There is a map of the world hanging on the wall of the living room. A few years ago, Irene asked her son to hang it. Next to the map, there is a line written: Irene and her son's world footprint. After the first summer vacation in Beijing, mother and son never traveled far together again.
After thinking it over, Irene gave her son the passbook. She told Li Bo that she had been driving for three years. If she doesn't accept it, she will have to do it again.
On June 2, 2020, at 4 am, 10, Irene, who went to see a doctor in Beijing, walked out of the railway station. My son and girlfriend stood at the door, holding Irene's box, pointing to a blue car and saying, Mom, I'll pick you up.
This is the eighth day after my son got his driver's license. In order to show his sincerity in apologizing, he practiced driving seven days ago and walked the whole city. I saw a driver who confidently told Irene that, like a driver who has been driving for many years, even if I hit him, he would take full responsibility. Irene, who didn't drive for a day, quickly dissuaded Li Bo: "Son, the car doesn't drive like this."
Out of the city, the roads in the village are all black. The rented car carefully got on the road and drove from the city to grandma's house in the country. Li Bo turned on the lights and drove from the darkness to dawn.
* In order to protect the client, Irene and Li Bo are assumed names.
-End-
Writing | Shirun Bridge
Edit | Wen Lihong
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